Actimed Therapeutics Ltd, located at The Old Bakehouse, Course Road, Ascot, Berkshire, England, SL5 7HL, and Actimed Therapeutic GmbH, located at Danziger Str. 17, 51491 Overath, Germany, are a clinical-stage pharmaceutical company bringing innovation to the treatment of cachexia and other muscle wasting conditions. Actimed Therapeutics Ltd is registered with the Information Commissioners Office as a Data Controller, registration number ZB510564. 

This data privacy notice is addressed to all customers, vendors, suppliers, contact persons, and other individuals ("Data Subjects", "you") of or in contact with Actimed Therapeutics Ltd/GmbH (“Actimed”, "us", "we"). It is meant to help you understand what personal data we collect, why we collect it, and how you can exercise your data protection rights. "Personal Data" in this document is any information relating to an identified or identifiable natural person, by direct or indirect means. In some countries, this can be called “personally identifiable information”.

You might have been provided with a privacy notice or contract for a specific purpose. If that is the case, the terms of the notice or contract will control your interaction with Actimed, to the extent that such notice or contract conflicts with this notice.

We take your data privacy and the protection of your personal data seriously and we are committed to the highest data privacy standards, patient confidentiality and adherence to the Data Protection Act 2018 and UK/EU GDPR. We also comply with applicable national regulations and will process your personal data in compliance with all applicable national and/or state privacy laws to meet our obligations

Processing of your personal data

We usually process your personal data for contractual purposes and to communicate with you for commercial reasons when you or we purchase any goods or services from the other. For this purpose, we only process such data which is needed to fulfil the contract itself and to comply with additional obligations we are subject to.

We also process personal data for our scientific research based on our legitimate interest, in the interest of public health, or as permitted for such research.

Please refer to the individual data privacy notices which we provide in the context of our business communication with you for further details about the corresponding processing of your personal data in this context. 

We collect your personal information via disclosure directly from you or in some cases someone you have nominated. This might be via our website, email, post, telephone, or face to face engagement.

Categories, type of personal data collected and purposes

The personal data we collect from you will be the minimum required for us to achieve the intended purpose of its collection. This may be to respond to your requests to us for information or in seeking employment with us, working on our behalf within our clinical development activities or participating in a clinical study as a trial subject. 

The categories and types of personal data collected will range from names and basic contact details to more sensitive medical and health related information. All personal data collected will be treated as confidential and protected. 

We will not collect or process your personal data without ensuring that we are doing so on a basis which meets any applicable state or national laws. In general, we will collect and process your personal data based on the following: 

• you have formally given us your expressed consent.
• in meeting requirements of a contract between us.
• it is in our or your legitimate interests.
• it is in your vital interests.
• to perform a public task.
• we have a legal obligation to do so.

Sharing of personal data

Your personal data will only be shared with our own staff, associates, or contractors when it is necessary for them to have access to complete their assigned responsibilities or provide their contracted services. Sharing of your data will be relative to the nature of our engagement with you. 

We utilise the services of other organisations who are critical for the provision of our service to you and will be viewed as data processors. Their access is restricted, and they are contractually bound to strict confidentiality and the protection of your personal data. 

There may also be legal obligations under which we have to share data as requested by nationally recognised regulators or authorities and when we process your personal data as part of our clinical research and development activities. If our business is wholly or partially transferred to a third party, your personal information may be one of the transferred assets.

Transferring information outside the UK

Our operations are based in the UK and Germany, and your personal information is generally processed within the UK and countries within the European Economic Area (EEA). In some instances, we may transfer your personal information to third countries, for example, where our suppliers or cloud service providers are situated outside the UK and EEA.  Should a data transfer involve the transmission of your personal data to countries that do not protect your privacy rights, we will ensure appropriate safeguards are in place.

How long do we keep your personal data for 

Personal data will not be kept for longer than is necessary to fulfil its purpose. As an exception, we may be required to retain your Personal Data for longer periods as required or permitted by law, or as necessary to protect our rights and interests. In such a case, you will be informed of the intended retention period in the applicable Privacy Notice, Informed Consent Form, or Patient Information Sheet.

Your rights in relation to your personal data

You have a number of rights related to the Personal Data that we Process about you (this will depend on the jurisdiction where you reside and the legal basis that we use). Most often, exercising your right is free of charge. We may also have to clarify your request and explain if we can comply with it or if this is restricted in your situation 

Below we have listed individual rights that may apply depending on your jurisdiction. 

You may have the right to:

• receive a copy of your Personal Data we hold about you;
• correct your Personal Data we hold about you;
• where applicable, receive a machine-readable copy of your Personal Data (portability);
• ask us to delete your Personal Data or restrict how it is used;
• where applicable, object to Processing of your Personal Data for certain purposes, such as when we use it for marketing purposes (opt-out); and
• where you have provided us with your consent to use your Personal Data, you can withdraw your consent at any time without affecting our use of such information before your withdrawal of consent.
• lodge a complaint to your designated supervisory authority. 

Exercising your rights, making an enquiry or complaint

If you took part in a clinical trial as a study subject, you should contact the institute where your trial took place (as we will not be able to identify you from the study data). Contact details will have been given on your Informed Consent Form or Patient Information Sheet. Failing this you can contact us directly using the details below. 

Data Protection Officer:  Amicis Data t/a Clinical DPO

Phone Number:  0203 411 2848

Email:  ActimedDPO@clinicaldpo.com